The Marfan Foundation has awarded seven new research grants totaling $750,000 to support innovative approaches to ...
A Marathon Nearly 40 Years in the Making: David Barnes Runs for the Marfan Foundation’s Team Victory
It’s been nearly 40 years since David Barnes last ran a marathon. In his 20s, he completed the Chicago Marathon twice and the ...
The Marfan Foundation and its VEDS Movement division have a longstanding history of supporting research that advances ...
VEDS Movement community member Isabella shares in first-person why the V matters to her to raise awareness during VEDS Action Month. The V matters to me because living with vascular Ehlers-Danlos ...
The second International Living Better Symposium in London brought together more than 200 people on October 10 for a day of ...
Scientists around the globe are working tirelessly on behalf of the VEDS community to advance research progress. And, they’re ...
Bella had a way of making people feel as though they were the only person in the world when she was talking to them,” said ...
Early-career scientists are bringing their work—and their ideas— to the 2026 Science in Spain gathering. There’s a lot to be excited about at the 2026 Science in Spain gathering: world-class ...
The Marfan Foundation shares with deep sorrow that on Monday, August 10, 2026, we lost our beloved co-Founder, Dr. Reed Pyeritz. Our hearts are with all who loved Reed, especially his wife, Jane ...
Doré Schubert was diagnosed with Marfan syndrome at age two after experiencing a dislocated lens. By age 16, she underwent her first spinal fusion surgery for scoliosis. “Still, I lived a pretty ...
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