The Marfan Foundation and its VEDS Movement division have a longstanding history of supporting research that advances ...

The second International Living Better Symposium in London brought together more than 200 people on October 10 for a day of ...

VEDS Movement community member Isabella shares in first-person why the V matters to her to raise awareness during VEDS Action Month. The V matters to me because living with vascular Ehlers-Danlos ...

Scientists around the globe are working tirelessly on behalf of the VEDS community to advance research progress. And, they’re ...

“Bella had a way of making people feel as though they were the only person in the world when she was talking to them,” said her dad, Peter Welch. She was deeply sensitive and caring, a careful ...

Today, writing that single letter remains one of the most important decisions of his life. “When I was young there was no internet, no email,” Chris said. “Many local medical professionals hardly knew ...

Michigan Heartworks Gala Jack Roth Stadium Club | 1201 S Main St, Ann Arbor, MI 48109 View Detail ...

What are the most common gastrointestinal issues in people with connective tissue conditions? The answer to this question and more can be found in this document from Tony Guerrerio, MD, PhD.

If a dissection is suspected, a person needs immediate medical attention and should go to a hospital emergency department right away. What you can do: Unless someone has a known diagnosis of Marfan ...