The Marfan Foundation and its VEDS Movement division have a longstanding history of supporting research that advances ...
VEDS Movement community member Isabella shares in first-person why the V matters to her to raise awareness during VEDS Action Month. The V matters to me because living with vascular Ehlers-Danlos ...
The second International Living Better Symposium in London brought together more than 200 people on October 10 for a day of ...
Scientists around the globe are working tirelessly on behalf of the VEDS community to advance research progress. And, they’re ...
The Marfan Foundation shares with deep sorrow that on Monday, August 10, 2026, we lost our beloved co-Founder, Dr. Reed Pyeritz. Our hearts are with all who loved Reed, especially his wife, Jane ...
The cast of NYC’s 25th Annual Putnam County Spelling Bee at New World Stages taking the #LarsonLove challenge in honor of Rent creator Jonathan Larson, who lost his life 30 years ago to aortic ...
Penelope shared her first-person story for Marfan Awareness Month. Hi! My name is Penelope Robles and I’m from the Philippines. This is the story of my 4-year-old daughter, Destinee Jaye, who was ...
A concise, evidence-based clinical guidance document from the Marfan Foundation in collaboration with Luciana Young, MD, offering families, pediatricians, and cardiologists practical information on ...
Throughout 2025, The Marfan Foundation continued its longstanding commitment to accelerating research that improves the lives of people affected by Marfan syndrome and related genetic aortic and ...
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